Monday, May 17, 2004

Kenna's Aplastic Anemia Journey - 05.17.2004


Date05/17/04 - Hospital
WBC

2.1

RBC3.34
HGB10.0
PLT164
SEG4
BAND0
Retic0
ANC84


Monday May 17, 04

This all started on March 8. Kenna’s been in the hospital this time straight through since April 19. It seems like months and months, not weeks. It is very hard to accept and impossible to understand.

Her chest tube came out today with no trouble and the doctor said she would probably go home tomorrow after a chest x-ray. With no tubes it was a pleasure to get a shower and walk the halls…for an hour…until a fever started! So again they are confined to their room with Kenna wanting to walk and Momma very patiently changing the subject over and over again. She has been in a private room up til now, but last night they needed it for another child, so was she put in with girl whose mom is also spending the nights. This will be hard on that family living with our night owl.

For now they are presuming the fever is a reaction to the removal of the drain. Depending on what the cultures show and if they can find the room, I guess they may try to isolate her again. When I left at 10pm Kenna had just done her nightly throw-up of the little bit she had nibbled on earlier. The doctors have no good explanations for that except maybe the chemo type meds she’s on.

This is a real test of faith. Discouragement and frustration in the whole medical process, and begging Jesus and Mary to remember for us like they did, that God has reasons we can’t fathom. This is certainly touching a lot of lives and forming one resilient little girl. She’s amazing through it all. They had to move her whole bed because she has a growing sticker collection from every x-ray and procedure. And she carefully decorates her forearms with Sponge Bob and Dora band aides. Once she has reminded them "no pokies," she is very cooperative with all the nurses for all the various mischief they have to do. And how her parents need grace to carry them! It is very hard on all. Thanks for your prayers.

MJ