Wednesday, August 18, 2004

Kenna's Aplastic Anemia Journey - 08.18.2004

 

Date08/16/04 - Clinic
WBC4.4
RBC3.19
HGB9.5
PLT57
SEG10
BAND0
Retic.2
ANC440

August 18, 2004

It's been several weeks now since I've written an update. I've lost track of just how many I've missed. Things have fallen into a pretty steady routine. Kenna goes early every Monday morning for a blood test to check the level of medication. The Cyclosporin she takes is a strong immune suppressant drug
and can have serious side effects, so the dosage has to be monitored closely, as well as her counts to determine the need for transfusion.  And it's nasty stuff to take besides.

Kenna and Carsyn were in another wedding this weekend for their Cousin Jeremy and new Cousin Julia in San Diego. He is Kenna's godfather, but they didn't even get a picture with him. Kenna was in such an irritable mood that she wouldn't stay still for the camera. She fell asleep immediately following the ceremony and slept all the way through the reception at the zoo. The rest of us had a lovely time.




It wasn't until Monday morning that we found out why the whole weekend was so difficult with her. The level of that powerful drug was extremely high, but we hadn't even considered that, since it's stayed within the acceptable range for so long. An adjustment has brought back our little sweetie. She's going again tomorrow for a re-check. This chronic condition is going to continue to take it's toll for quite a while to come. We are grateful for the prayers that sustain us.


Date08/18/04 - Clinic
WBC3.0
RBC3.12
HGB9.0
PLT13
SEG27
BAND0
Retic.4
ANC810